top of page
Pintura blanca
Mano del bebé

RARE DISEASES ARE NO LONGER
ORPHANS

Mano del bebé

RARE DISEASES ARE NO LONGER ORPHANS

Mano del bebé

RARE DISEASES ARE NO LONGER
ORPHANS

Last live

7768EAE5-576B-40DA-BB16-6A0554001FDA.jpeg
Olas blancas

EVENTS

Here you can book yourself to participate in events such as talks, seminars, symposiums and others related to rare or orphan diseases.

You can also find out about the commemorative days alluding to these diseases.

 

DÍAS CONMEMORATIVOS

7 MAYO DIA DE LA ESPONDILITIS  (1).png
Día Internacional Osteogénesis Imperfecta.png
26 feb 2024.jpeg
27 feb 2024.jpg
28 FEB 24.jpeg
Sabias que no copago.jpg

**Excepciones para el cobro de cuota moderadora. ATENCIÓN DE PACIENTES CON ENFERMEDADES HUÉRFANAS Y ULTRA HUÉRFANAS. 
**Excepciones del cobro de copagos. ATENCIÓN INTEGRAL PARA EL MANEJO DE ENFERMEDADES HUÉRFANAS DE PACIENTES INSCRITOS EN EL REGISTRO NACIONAL DE ENFERMEDADES HUÉRFANAS. Por esta razón es muy importante que los médicos las notifiquen al SIVIGILA

Agedate

LEARN

Sanfilippo and Multiple Sclerosis

Dance and health.

 

Systems Engineering in Health

 

The infirmary

 

Bacteriology, Clinical Laboratory Scientist and Geneticist

 

Luz Mireya Sandoval: Testimony of a Rare Disease

 

FECOER: Colombian Federation of Rare Diseases

 

Monkeypox

 

Testimony Ana Jimenez, her fight for a Diagnosis

 

Legal Aspects Regarding the Rights in the Health System

in the Use of Psychoactive Substances

 

Patients and Students - Faculty of Medicine - U de A

 

Health in Holiday Times

 

Research of Patients with Orphan Diseases

 

Feeding in Porphyrias

 

Marijuana Myths and Facts

 

Foundations for the Porphyrias

 

Sanfilippo syndrome

 

In the Month of the Porphyrias we are going to talk about them

 

Hemophilia

 

The Caretaker

 

Pulmonary Hypertension

 

Painkiller Abuse in Children

 

The vitamins

 

Multiple sclerosis

 

Glycogenosis

 

The Start of a New Year in Patients with Porphyria

 

 

Pelvic Floor Workshop

 

Physiotherapy and Pelvic Floor Exercises

Diagnosis of Inborn Errors of Metabolism

 

2nd Conference on Orphan Diseases (18/Feb/2023)

 

Legislation on orphan diseases

Aprende
bottom of page