
EN VIVO Fecha | Hora Colombia | Click Aquí >>> |
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14/09/2024 | 10:00 a.m. | Generalidades de Enfermedades Huérfanas |
21/09/2024 | 10:00 am | Diagnóstico de Enfermedades Raras |
28/09/2024 | 10:00 am | Tratamiento de Enfermedades Raras |
05/10/2024 | 10:00 a.m. | ¿Cómo se heredan las Enfermedades Raras? |
12/10/2024 | 10:00 a.m. | Errores Innatos del Metabolismo |
19/10/2024 | 10:00 a.m. | Diagnóstico de Porfiria |
26/10/2024 | 10:00 am | Enfermedades Raras en Panamá |
Fecha | CONMEMORACIONES |
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14/10/2024 | Día mundial del Donante de organos, tejidos y células |
08/10/2024 | Día mundial de los Cuidados Paleativos |
Last live


EVENTS
Here you can book yourself to participate in events such as talks, seminars, symposiums and others related to rare or orphan diseases.
You can also find out about the commemorative days alluding to these diseases.
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**Excepciones para el cobro de cuota moderadora. ATENCIÓN DE PACIENTES CON ENFERMEDADES HUÉRFANAS Y ULTRA HUÉRFANAS.
**Excepciones del cobro de copagos. ATENCIÓN INTEGRAL PARA EL MANEJO DE ENFERMEDADES HUÉRFANAS DE PACIENTES INSCRITOS EN EL REGISTRO NACIONAL DE ENFERMEDADES HUÉRFANAS. Por esta razón es muy importante que los médicos las notifiquen al SIVIGILA
LEARN





Sanfilippo and Multiple Sclerosis
Bacteriology, Clinical Laboratory Scientist and Geneticist
Luz Mireya Sandoval: Testimony of a Rare Disease
FECOER: Colombian Federation of Rare Diseases
Monkeypox
Testimony Ana Jimenez, her fight for a Diagnosis
Legal Aspects Regarding the Rights in the Health System
in the Use of Psychoactive Substances
Patients and Students - Faculty of Medicine - U de A
Health in Holiday Times
Research of Patients with Orphan Diseases
Feeding in Porphyrias
Marijuana Myths and Facts
Foundations for the Porphyrias
Sanfilippo syndrome
In the Month of the Porphyrias we are going to talk about them
Hemophilia
The Caretaker
Pulmonary Hypertension
Painkiller Abuse in Children
The vitamins
Multiple sclerosis
Glycogenosis
The Start of a New Year in Patients with Porphyria
Pelvic Floor Workshop
Physiotherapy and Pelvic Floor Exercises
Diagnosis of Inborn Errors of Metabolism
2nd Conference on Orphan Diseases (18/Feb/2023)