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EVENTS AND MEMORIAL DAYS

In this space you can find events such as talks, seminars, symposiums and others related to rare or orphan diseases.

You can also find out about the commemorative days alluding to these diseases.

Eventos y Días Conmemorativos

Bases of Homeopathy and its application in Porphyrias

We invite you to join us for a masterful talk on Homeopathy given by Dr. Ubier Gómez virtually and through the Zoom platform.

Event organized by:

FUNDAPOR and the University of Antioquia

 

We are waiting for you!

Link for the Talk:

https://us02web.zoom.us/j/89917892874

🕛 Hours: 2:30 pm to 5:00 pm

Don't miss this talk!!!

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Date: Tuesday

August 23, 2022

Collaborative Project
Orphan Disease Pathway

📌Join us at the *Launch of the Orphan / Rare Diseases Route Collaboration Project*

 

This initiative is the result of a joint effort between actors of the Health System in #Colombia who intend to give an approximation to the reality of Orphan / Rare Diseases in the country and propose a route for their management.

 

🗓️ Date: Wednesday August 31, 2022

🕛 Hours: 2:30 p.m. to 5:00 p.m.

📍 Location: Luis Carlos Galán Auditorium. Pontifical Javeriana University.

 

🔗

Registration link: https://forms.office.com/pages/responsepage.aspx?id=FszLk9Z_XkGbm8dNo--oA8QuOtgVGJxFjhe1wV2xAK5UOEdTTU04TVJFS1hBMEtITUVKRkRQNjBIWC4u&fbclid=IwAR0nWmMNvXeRvd2MOr rHPFo_Tbe4gyov35l23zEAwWWvpOrxV7Nr8txdIM4

 

#Health #HealthCare #PublicHealth #RareDiseases #FECOER #FECOERSomosTodos #PatientJourney

Do not miss this release !!!​

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Date: Wednesday,

August 31, 2022

Development Support Conference
Party and Health!​

In the Municipal Coliseum of Carmen de Viboral.

🕗 8:00 am - 3:00 pm.

👉🏻👉🏻👉🏻👉🏻👉🏻Acércate a esta jornada donde podrás disfrutar de diferentes servicios que se ofrecerán en el área de la salud como:

  • Pediatrics

  • General medicine

  • Genetic Consulting

  • Gynecology

  • Odontology. And many others….

 

⭐️ Biogenweb estará presente y allí te conocerás sobre los servicios que ofrecemos.

 

Con Biogenweb también podrás recibir una consultoría y/o asesoría en Bioquímica y Genética Molecular, que va dirigido a cualquier persona que busque mejorar su estado de salud.

Don't miss this Conference!!!

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Date: Saturday, July 2, 2022

Academic Day in Commemoration of the International Day of Patients with Porphyria

Dr. Natalia Mesa will give some presentations during this activity.

Their presentations will be the following:

- The food

- The Test of the Sun

Don't miss this Conference!!!

Date: Wednesday, May 18, 2022

1st Symposium
Knowing the Mucopolysaccharidoses

"At Sanfilippo we are working to raise awareness not only about #Sanfilippo, but also about #rare diseases such as #mucopolysaccharidosis.
For this reason, in the company of @genosig.umng, @preverdec, @fecoer21, we have organized this symposium aimed at medical students or health careers, general practitioners or health professionals (nursing among others), specialists in various areas (pediatrics, neuropediatrics, genetics, among others) nationally and internationally.
Modality: face-to-face and virtual.

sign up for
https://linktr.ee/sanfilippo.colombia "

Do not miss this Symposium !!!​

Date: Friday, May 13, 2022

Symposium
Orphan Diseases
SIVIGILA and Current Regulations

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Symposium Agenda

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Do not miss this Symposium !!!​

Date: Wednesday, September 7, 2022

Physical Activity Hygiene
and of Sport
Burnout Caregiver Syndrome

On this occasion the talk will have as guests:

* Maria M. Becerra (Indeportes Nurse)

* Mary Luz Arbeláez (Psychologist)

Event organized by:

FUNDAPOR and the University of Antioquia

 

The Talk is Face-to-face

Inscription

https://docs.google.com/forms/d/e/1FAIpQLSd4iRMbEGXv_8xC521DgKMvFH4hYK-f9pBuqpUvKABrtkja4g/viewform

🕛 Hours: 2:00 pm to 4:00 pm

Don't miss this talk!!!

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Date: Saturday

September 10, 2022

2a. Meeting of the Municipal Board of Orphan Diseases

"These working groups are formed with the objective of working together with the civilian population, patients, caregivers, members of the health sector and the general population, so that they participate in the search for good policies that help the people suffering from any orphan disease.

.

 

🗓️ Date: Friday, October 14, 2022

🕛 Hours: 2:00 p.m.

📍 Place: Meeting Room, 2nd. Town hall floor

A very important meeting!

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Date: Friday, October 14, 2022

Ultimo Evento

The power of data and research in Multiple Sclerosis MS

.

 

🗓️ Date: Saturday November 19, 2022

🕛 Hours: 10:00 am (Colombian time)

Connection Line Go To Meet Platform

www.alem-colombia.org

Connection Link: https://meet.goto.com/I885I1909

With professional experts!​

Date: Saturday, November 19, 2022

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