top of page
Pintura blanca
Mano del bebé

RARE DISEASES ARE NO LONGER
ORPHANS

Mano del bebé

RARE DISEASES ARE NO LONGER
ORPHANS

Olas blancas

SCHEDULE YORSELF

Here you can book yourself to participate in events such as talks, seminars, symposiums and others related to rare or orphan diseases.

You can also find out about the commemorative days alluding to these diseases.

Agedate
Mano del bebé

RARE DISEASES ARE NO LONGER
ORPHANS

Next live

  • YouTube
  • Facebook
  • Instagram
7768EAE5-576B-40DA-BB16-6A0554001FDA.jpeg
B822A3B9-8848-4F5E-9215-02FF0B2D83ED.jpeg
F310A0D7-9CDD-4670-BA9F-23609EED482B.jpeg

Sanfilippo and Multiple Sclerosis

Dance and health.

 

Systems Engineering in Health

 

The infirmary

Bacteriology, Clinical Laboratory Scientist and Geneticist

 

Luz Mireya Sandoval: Testimony of a Rare Disease

FECOER: Colombian Federation of Rare Diseases

 

Monkeypox or Monkeypox

 

Testimony Ana Jimenez, her fight for a Diagnosis

Legal Aspects Regarding the Rights in the Health System in the Use of Psychoactive Substances

Patients and Students - Faculty of Medicine - U of A

 

Health in Holiday Times

Research of Patients with Orphan Diseases

Feeding in Porphyrias

Marijuana Myths and Facts

Foundations for the Porphyrias

Sanfilippo syndrome

In the Month of the Porphyrias we are going to talk about them

Hemophilia

The Caretaker

Pulmonary Hypertension

Painkiller Abuse in Children

The vitamins

Multiple sclerosis

Glycogenosis

The Start of a New Year in Patients with Porphyria

Pelvic Floor Workshop

Physiotherapy and Pelvic Floor Exercises

Diagnosis of Inborn Errors of Metabolism

LEARN

Aprende
bottom of page