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Agenda
DIARY
8:00 a.m. Opening
8:30 a.m. life testimony
9:15 a.m. hepatic porphyrias
10:00 am Nutrition in porphyrias
10:45 a.m. Break
11:00 a.m. Neuropediatrics in Orphan Diseases
11:45 a.m. BIOGENWEB
12:15 a.m. Break
1:00 p.m. Orphan Disease Policies
1:45 p.m. Treatment in Orphan Diseases
2:30 p.m. Break
2:45 p.m. Orphan Diseases Overview
3:30 p.m. Underregistration of Orphan Diseases in Colombia
4:15 p.m. FECOER
5:00 p.m. Pelvic floor in orphan diseases
5:45 p.m. Closing
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